Do you have fibromyalgia?

Do you have fibromyalgia (FM)? Do you love someone who has fibromyalgia?

This site is meant to gather the many questions that people have about this condition. Fibromyalgia has been around for a long time, but it is only within the past few decades that it has been recognized as a “diagnosable” illness.

This site is brand new, so it is limited in content as I gather information. The most important thing I need from you, the reader, is questions. What do you want to know about fibromyalgia whether it is for  you, as someone who has it, or about or for someone you know. For example, someone asked me, “My mother has fibromyalgia – will I get it too?” Another person asked, “My coworker has fibromyalgia and is often too fatigued to finish her day. How can I help her?”

Ask your question here.

As the questions come in, we can work together to find answers to help us find ways to live with fibromyalgia.

Who am I?

My name is Marijke Vroomen Durning. I’m a health writer and a registered nurse. I’ve had fibromyalgia for many years, but was only formally diagnosed a few years ago. My main problem is fatigue, although pain is present too.

I am not an expert on fibromyalgia, but I have written about it and I’ve lived with it. When I don’t know the answer to a question, I will ask an expert or experts, to get their opinion and ideas.

Here are two pieces I have written about fibromyalgia:

Fibromyalgia – Living with a controversial chronic disease Stanford University, Scope blog

You don’t have to look sick to be sick – Understanding fibromyalgia – Fibromyalgia and Chronic Pain Life

I also have a blog, called Marijke: Nurse Turned Writer. I have written about fibromyalgia there too.

7 Responses to Do you have fibromyalgia?

  1. Maureen Gerken says:

    Both links take you to the same article. I like to read about this as a few of my friends here have struggled with this.

    My question: does diet play a role in coping with fibromyalgia?

  2. Alison says:

    Does fibromyalgia ever affect cognition, like does it ever cause ‘brain fog’?

  3. Maureen Salamon says:

    One thing I’ve never heard about fibromyalgia is whether it’s present every day or whether it comes in episodes like an exacerbation or “episode” in MS, for instance. Or is that different for everyone who has it?

  4. Marijke says:

    Thanks Maureen – while this type of thing is individual, there are some specific answers. I’ll let you know when that post goes live.

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